«

»

Lily’s Story: Sharing her story through her own voice

April 4th, 2012 by | Tags: , | 3 Comments »

While Lily shared her story with us a few years ago on Cochlear Implant Online, she took a moment to share her story again through her own voice.  Lily first received her cochlear implant in 1992 at the age of 2 and a half years old.

3 Comments

Cristina

April 4, 2012 at 8:04 pm

Lily,
Thanks a lot for sharing your story, my daughter will be implanted in 3 weeks and she’s 2 and half years old, exactly the same as when you were implanted.
Can you pls. spend some time and advice what were the best things that you or you mother can remember helped you the most for the speech devolopment when you were just implanted.
Lastly how are you wearing your implants, in the video I can not even see the processors!!!
Thanks in advance

April 7, 2012 at 5:20 am

Rachel was 2 1/2 when she was implanted. We worked with an Auditory-Verbal therapist. Our therapist had me keep experience books for her. Rachel loved them. We had to read through them every night. I used the books to work on language that she needed. Some books were about random things that we encountered during the day. Others were subject specific, such as one we made about her preschool. The teachers let me go to the school and photograph the other students, the classroom, and the playground. I pasted all the photos into the book, and we talked about everything at school, and it also helped her learn all the names of the other students in her class.

Our therapist in Atlanta worked on thematic units, systematically addressing large areas of vocabulary and concepts. We spent about a month on each unit, and the units included topics such as the zoo, the farm, the house, school, summer, winter, feelings and emotions, and fairy tales. All of our activities revolved around the current unit. We would create a scene with toys such as Playmobil and Fisher-Price Little People. We’d read books on the topic, and even use items from the topic for activities such as multi-item directions and exercises to work on auditory sequential memory.

Lily

April 10, 2012 at 12:06 am

Hi, Cristina!

Your daughter is at a great age to be implanted. I wish you and your family the best of luck.

You can’t see my CI in the video because I’m wearing a behind-the-ear processor. It probably also helps that I have my hair down!

I think that, after the surgery, talking/reading out loud/playing music with your daughter — introducing her to sound in any way possible, as frequently as possible — will help a lot. I really believe that my parents’ dedication to reading to me every night when I was little, for instance, is hugely accountable for my comfort with language/speech/etc. today.

A speech therapist also helps.

Again, good luck, and let me know if you have any more questions!